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singlewithtriplets
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George, Harry Me and Laura as babies


« on: October 12, 2009, 12:37:21 am »

 Huh?

George off to see surgeon about possible operation on severely flat feet, feet turning inwards severe pain when walks, been told prob only operation will help he went 3 months ago feet size now he is 9 and still growing but pain is so bad he needs pain killers

anyone any advice he has had physio and endless moulds wedges in shoes he is 13 this been going in since he was 5 I admit I cry at night with him but no one seems to understand
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topsyturphy
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« Reply #1 on: October 12, 2009, 11:59:21 am »

I am sorry I have no advice. I think it hurts you as well when your children are in pain. I hope the surgeon can do something for your son so that he doesn't have to suffer as much pain.
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eccentrica
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« Reply #2 on: October 12, 2009, 12:32:52 pm »

Hi hun,
No advice, but a bit of sifting on the internet has shown quite a lot about flat feet surgery....maybe useful to have a look? I searched under "operations for flat feet"

From what I can see, the operatons vary slightly, but most seem to be really successful. Aftercare though is a bit constraining. Plaster casts and restricted walking etc.

Good luck.

Lx
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #3 on: October 12, 2009, 01:26:37 pm »

Just got back from appointment George feet much worse than three months ago so now intensive therapy and night splints for the full legs I am not looking forward to trying to get a nearly 14 year old to wear splints strapped to his leg

Need to see different surgeon so on waiting list and waiting list for more physio

will take a look at internet thanks x
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Ann Stig (official SWK booking name)
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« Reply #4 on: October 12, 2009, 07:21:52 pm »

Oh good luck with this......i can imagine the grief your gonna get each night

Ann x
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #5 on: October 13, 2009, 07:11:12 pm »

 Huh? splints not going down well rang up to speak to consultant and he has given me an appointment next tues so thats good news at least things started moving although after all the tears last night I am glad. looked online at surgery but have to say some of the pictures were not as bad as Georges feet but it does take a lot of recovery afterwards and that is the worst thing as I will have to change my dining room to bedroom have ramp fitted etc but as long as we can progress and he can do things other people do will be great improvement :Smiley
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Ann Stig (official SWK booking name)
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« Reply #6 on: October 20, 2009, 04:30:39 pm »

oh sorry to hear the splints arent going well.  Is that cos of the grief your getting, or just working like expected?

Ann x
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« Reply #7 on: October 20, 2009, 10:16:29 pm »

No advice to give, but hope that things start moving more positively when you see the Consultant on Tuesday.

My younger son is 12 and the thought of him sleeping splints would not be a good one.  Keep posting.  I'm sure we will all give you support even if it's only to send best wishes and hugs, which I am.

C xx
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #8 on: November 06, 2009, 09:58:38 pm »

 Sad Sad Sad Sad Sad Sad Sad Sad Sad Sad Sad

Seen Consultant and began physio

Getting worse consultant stopped use of splints not helping at all, sending him for mri scan with view to operation

physio today was awful, george is finding it hard to walk for more than ten mins without severe pain, he cried all time with pain even though he tried not to, physio said problems with feet bones fused together, ankle, tendons, knees and cartledge and also not got hardly quadracepts and is concerned that hips not aligned.

Massage/exercises/hydrotherapy until mri scan

totally gutted cos they said maybe because he is a triplet not enough room to grow, he was one of four I miscarried one at 8 weeks. This makes me feel even more guilty than before may as well, we tried 6 years to have kids tried fertility tablets never worked gave up only to get pregnant 8 months after stoping fertility tablets. Found out it was 4 then 3 then told had cervical cancer and told to abort which I rfused to do, had hysterectomy when kids were born.

this week i accidentally spilt drink on my only scan photo showing all 4 on so cried a river over that now this on top if only icould take his pain away i cant stand it when he says why me? it breaks me up
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #9 on: November 06, 2009, 09:59:49 pm »

Huh?

George off to see surgeon about possible operation on severely flat feet, feet turning inwards severe pain when walks, been told prob only operation will help he went 3 months ago feet size now he is 9 and still growing but pain is so bad he needs pain killers

anyone any advice he has had physio and endless moulds wedges in shoes he is 13 this been going in since he was 5 I admit I cry at night with him but no one seems to understand
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jakatella
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« Reply #10 on: January 04, 2010, 12:57:13 pm »

Just a thought but have you tried earth shoes my mum has rsd in her foot and walking is very difficult and painful but finds it easier while wearing earth shoes, not the cheapest or most fashionable but less pain
Rachel
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« Reply #11 on: January 04, 2010, 02:31:35 pm »

There was an article about this in the Times on Saturday about a new treatment for flat feet, it basically involved putting a stent in the foot, done under local aneasthetic, with minimal pain.

I will look and see if I can see online and post link

TB
xx
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« Reply #12 on: January 04, 2010, 08:19:42 pm »

I have no real advice, but just wanted to send hugs to you and your son.  I know what it is to want kids so badly and then have problems afterwards.

He is one hell of a lucky kid though to have a sensitive mom like you.  Take each challenge as it comes.

Take care.

Nicky x
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #13 on: January 13, 2010, 11:11:39 pm »

Mri showed some fused bones but delaying surgery having physio 3 times week and hydrotherapy for 3 more months which is hard work as you will know getting any kid to do what they need to just so fed up because my ex is no support and i feel going through this all on my own x
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« Reply #14 on: January 13, 2010, 11:14:29 pm »

aw hun sorry to hear that you feel your getting no support i have no advice but just wanted to send u a hug (((((((((((((((((((()))))))))))))))))))))))))))))))))
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Flower37
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« Reply #15 on: January 13, 2010, 11:25:43 pm »

just sending you my hugs too xxxxxxxxxxxxxx
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Ann Stig (official SWK booking name)
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« Reply #16 on: January 14, 2010, 12:27:52 am »

You sound frustrated!

Hugs Hun x
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Fingers crossed I get DLA in July, as the backpay is going on a campervan...,.,.weyhey!!!!
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« Reply #17 on: January 18, 2010, 09:58:41 pm »

So sorry that you are having such a ruddy awful time.  Lots of hugs and remember to take care of yourself.

C xx
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« Reply #18 on: January 20, 2010, 10:36:08 pm »

Sending you a hugs too, I have only had it for the last 8 weeks which has been hard enough but to go through it for 3 months without any support must be so tough. Is there no support worker at the hospital that can help you in any way, even just to talk through things with you and your son.
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singlewithtriplets
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George, Harry Me and Laura as babies


« Reply #19 on: July 12, 2010, 12:07:51 am »

George still at physio and still going three times a week not been on here for ages as Harry managed to break his pelvis playing football and after 20 weeks on crutches has now joined George at physio so between them I am there 5 times per week

Harry will need it for 6 months with pool treatment

George indefinately

George was to have operation on feet in school holidays but been cancelled til xmas not good his feet now a size 11 and he is towering above me and pain a daily battle he is on dla for asthma but when i renewed i told them about his feet and mobility and they dismissed it

i ended up with two hernias from lifting harry out of bath when he slipped so now i need an operation hopefully before george totally fed up!
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« Reply #20 on: July 14, 2010, 07:52:33 pm »

Things just seem to get worse and worse for you.   All I can do is send you lots of hugs and PMA.  Keep posting to let us know how you're all getting on.

C xx
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